I abhor social situations. Big or small. Family, close friends, or strangers. It’s all the same. I feel an overwhelming desire to run, hide, and call my mommy. If I can get out of going then I just won the lottery. If I can’t? Well, maybe it will be fun? Cringe. Here’s the thing: I’mContinue reading “Just Plain Peculiar”
Tag Archives: chronic illness
Act Your…What?
“You don’t act like a disabled person.” Um, not sure what you mean. “You need to start acting like a person with a disability.” Yeah, that didn’t clear anything up. Can you be more specific? “The way you are, the way you act, the way you live. That’s not how someone with your condition shouldContinue reading “Act Your…What?”
Double Shot
I was three years old when I was diagnosed with chronic renal failure. There was a mistake, an ego trip, and it all led to my life being interesting? Is that the right word? It wasn’t…boring? Wow. Okay. No, not even close, but I do understand the confusion. All you hear about are the explodingContinue reading “Double Shot”
Can You See Me Now
Have you ever been invisible? Looked through. Talked over. Scream and shout but no one hears you. Seriously consider walking through that wall over there because you must be a ghost. When my kidneys shut my body followed. My bones became brittle and every step created micro-fractures. My heart doubled in size. The fluid aroundContinue reading “Can You See Me Now”
The Bubble
Being diagnosed with a chronic illness has a profound impact on a life. It’s a thunderclap that reverberates through our bodies, minds, and families. It enshrouds our lives and takes over. It becomes our whole world. Before my diagnosis, I was a normal kid. I loved going to the beach, playing with my dog,Continue reading “The Bubble”
